8 Total
3 High severity
4 Medium severity
1 Low severity
Summary

This document establishes 23andMe's data collection, use, and sharing practices for genetic testing services, including DNA information, health data, and personal identifiers. The policy authorizes sharing genetic and health data with third-party research partners in de-identified form when users opt into Research participation, and permits transfer of personal and genetic data to successor entities in the event of merger, acquisition, or bankruptcy. Users may modify Research participation status, sample storage preferences, and request account deletion through account settings, though the policy specifies that data already incorporated into completed research or previously shared with third parties cannot be recalled upon deletion.

Technical / Legal Breakdown

This Privacy Statement, published by 23andMe Research Institute, governs the collection, use, storage, processing, and transfer of personal information across all 23andMe websites, the mobile app, and related services, including genetic testing and optional telehealth services for which a separate Medical Record Privacy Notice applies. The agreement states that 23andMe collects genetic information, self-reported health and demographic data, web and app usage data, device identifiers, and payment information; the terms authorize use of this data for product improvement, research (with separate consent), and sharing with service providers, business partners, and successors in interest. The policy discloses that genetic and health data contributed to Research may be shared with third-party research partners in de-identified or aggregated form, and that in a business transfer scenario such as a merger or bankruptcy, personal and genetic data may be transferred to an acquiring entity, creating operationally distinct exposure given the sensitivity of genomic information; the agreement asserts that users retain certain deletion rights but notes that data already incorporated into research or shared with third parties prior to deletion may not be fully recoverable. This document engages GDPR for EU/EEA users, CCPA and California Genetic Information Privacy Act for California residents, HIPAA considerations arise at the margins given the health-related nature of data though 23andMe is not a covered entity for its primary DTC service, and the FTC has authority over unfair or deceptive privacy practices applicable to this document. Given 23andMe's pending bankruptcy proceedings and the sensitivity of genomic data held at scale, compliance teams should evaluate data transfer obligations, successor entity consent requirements, and the adequacy of de-identification standards used prior to third-party research sharing.

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3 important changes detected

4 versions captured · Last updated: May 2026

May 5, 2026

medium
What changed 23andMe removed a sentence that described separate privacy protections for telehealth services and updated references to the company name in the scope statement and contact section. The removed language previously directed users to a separate Medical Record Privacy Notice for telehealth-related medical information. The updated privacy statement no longer explicitly references this separate notice or explains how medical information collected through telehealth services is handled under different privacy rules.
Why this matters The updated privacy statement no longer explicitly directs users to a separate Medical Record Privacy Notice for telehealth services or explains that medical information collected through telehealth is governed by different privacy rules. Previously, the policy stated that users choosing telehealth services coordinated through 23andMe would find healthcare privacy protections described in a separate notice. That reference is now absent from the main privacy statement. Users seeking privacy information specific to telehealth services will need to determine independently whether a separate notice exists or contact 23andMe directly using the provided contact information.
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What changed 23andMe updated its Privacy Statement on April 19, 2026 to clarify that the policy applies to websites owned and operated by 23andMe Research Institute rather than 23andMe broadly. The update also adds disclosure that users who receive Telehealth Services through licensed healthcare providers are subject to a separate Medical Record Privacy Notice describing how medical information is handled. A minor address formatting change was also made.
Why this matters The updated Privacy Statement now clarifies that it is issued by 23andMe Research Institute and applies to the company's websites and services. Users who receive Telehealth Services through licensed healthcare providers are now explicitly directed to a separate Medical Record Privacy Notice that governs how their medical information is used and maintained. This clarification distinguishes general privacy practices from medical record handling practices.
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March 23, 2026 medium

23andMe removed a reference to its Research Institute from the opening scope statement, changing 'websites owned and operated by 23andMe Research Institute' to 'websites owned and operated by 23andMe'. The …

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High — 3 provisions
Medium — 4 provisions
Low — 1 provision

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Related Analysis

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23andMe Is Bankrupt. What Happens to Your DNA Now?

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Archival ProvenanceSource & Archival Record
Last Captured May 5, 2026 08:13 UTC
Capture Method Automated scheduled archival capture
Document ID CA-D-000148
Version ID CA-V-002162
SHA-256 63c2151dde4633ecb5dd07963f13c680243c0545eff1c5db6595cc32e105ce41
✓ Snapshot stored ✓ Text extracted ✓ Change verified ✓ Hash verified

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