23andMe · 23andMe Privacy Statement · View original document ↗

Deidentified data pooled in research

High severity High confidence Explicitdocumentlanguage Common · 280 of 352 platforms
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This analysis describes what 23andMe's agreement states, permits, or reserves. It does not constitute a legal determination about enforceability. Regulatory applicability and practical outcomes may vary by jurisdiction, enforcement context, and individual circumstances. Read our methodology

ConductAtlas Analysis

Why it matters (compliance & governance perspective)

The clause establishes that research participation results in the user's deidentified data being combined into a collective dataset, which has implications for how individual data contributes to broader research outputs.

Recent Activity

This document changed recently

Medium May 5, 2026

The updated privacy statement no longer explicitly directs users to a separate Medical Record Privacy Notice for telehealth services or explains that medical information collected through telehealth is governed by different privacy rules. Previously, the policy stated that users choosing telehealth services coordinated through 23andMe would find healthcare privacy protections described in a separate notice. That reference is now absent from the main privacy statement. Users seeking privacy information specific to telehealth services will need to determine independently whether a separate notice exists or contact 23andMe directly using the provided contact information.

View change record →
Medium Mar 23, 2026

The updated privacy statement no longer explicitly discloses a separate Medical Record Privacy Notice that previously described how medical information is used, disclosed, and maintained for telehealth services. Users who receive telehealth services coordinated through 23andMe may now lack clear notice of which privacy framework governs their medical records, since the reference to that parallel notice has been removed. The organizational scope change from '23andMe Research Institute' to '23andMe' narrows the explicitly named entities responsible for the policy, though operational impact depends on how these entities actually function.

View change record →

Clause Stability Stable

0
Changes
3
Months Monitored
Jul 10, 2026
First Seen
Jul 10, 2026
Last Seen
This clause type exists across 3354 other provisions on other platforms.

Consumer impact (what this means for users)

If the reader opts into research, their deidentified data will be pooled with other participants' data by 23andMe.

How other platforms handle this

Glassdoor Medium

We may use your personal data to conduct research...we conduct and publish research about the labor market, the economy, job opportunities, jobseeker and employee behaviors...

MyFitnessPal Medium

We use your personal information to send you newsletters and other promotional communications, including information about MyFitnessPal's new offerings, features, offers, events, webinars, and other information.

Lyft Medium

We may infer certain information from your interactions with the Lyft Platform and other personal information available to us. For example, if you frequently ride to or from airports, we may infer you are a frequent traveler.

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▸ View Original Clause Language DOCUMENT RECORD
"
If you choose to participate in research, your deidentified data will be pooled with data from other participants.

— Excerpt from 23andMe's 23andMe Privacy Statement

Applicable regulations

BIPA
Illinois, USA
CCPA/CPRA
California, USA
CAN-SPAM
United States Federal
ePrivacy Directive
European Union
FTC Act Section 5
United States Federal
GDPR
European Union
HIPAA
United States Federal

Provision details

Document information
Document
23andMe Privacy Statement
Entity
23andMe
Document last updated
May 5, 2026
Tracking information
First tracked
July 9, 2026
Last verified
July 9, 2026
Record ID
CA-P-026186
Document ID
CA-D-00148
Evidence Provenance
Source URL
Wayback Machine
Content hash (SHA-256)
84a7d427df1aaecf20068443719f4fe644ec63786924fac774f611468fc0435b
Analysis generated
July 9, 2026 07:23 UTC
Methodology
Evidence
✓ Snapshot stored   ✓ Hash verified
Citation Record
Entity: 23andMe
Document: 23andMe Privacy Statement
Record ID: CA-P-026186
Captured: 2026-07-09 07:23:55 UTC
SHA-256: 84a7d427df1aaecf…
URL: https://conductatlas.com/platform/23andme/23andme-privacy-statement/provision/CA-P-026186/deidentified-data-pooled-in-research/
Accessed: July 13, 2026
Permanent archival reference. Stable identifier suitable for legal filings, compliance documentation, and research citation.
Classification
Severity
High
Categories

Other risks in this policy

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Frequently Asked Questions

What does 23andMe's Deidentified data pooled in research clause do?

The clause establishes that research participation results in the user's deidentified data being combined into a collective dataset, which has implications for how individual data contributes to broader research outputs.

How does this clause affect you?

If the reader opts into research, their deidentified data will be pooled with other participants' data by 23andMe.

How many platforms have this type of clause?

ConductAtlas has identified this type of provision across 280 platforms. See the full comparison.

Is ConductAtlas affiliated with 23andMe?

No. ConductAtlas is an independent monitoring service. We are not affiliated with, endorsed by, or sponsored by 23andMe.